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BE A SUPERHERO. SAVE A LIFE.

1 out of about 150,000 boys are born with Mucopolysaccharidosis II (MPS II), also known as Hunter Syndrome. This rare metabolic disease is one of many types of MPS which affects the joints, the liver, the spleen, the airway, the heart, and in most cases, the brain which goes through cognitive regression. The life span for someone with this disorder is expected to live up to around 12-15 years old.

Charlotte 11-year-old spreads awareness for cousin’s debilitating disease

A 5-year-old has traveled from Miami to the Queen City to seek help from people who can potentially save his life.
Those people? Specialists and his 11-year-old cousin.

“He’s really funny, he’ll make you laugh,” Mia said of her cousin Kalel.

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Inaugural MPS SuperHero 5K

Join us on Saturday, March 3, 2018 for our Inaugural MPS SuperHero 5K Run/1Walk to raise awareness and fund a cure for MPS II Date:                    Saturday, March 3, 2018 Start Time:         7:00am to 12:00pm Location:             Vista View Park  4001 Southwest...
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A night of SuperHeroes

On October 25, 2017 we teamed up with the Miami Heat as the nonprofit of the night "A night of SuperHeroes." Tickets sold from the Heat game raised proceeds towards our foundation. We are happy and grateful to the Miami Heat Organization and the Headquarter Toyota...
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Media Coverage

Articles

Just a regular Thursday for our MPS SuperHeroes

Just a regular Thursday for our MPS SuperHeroes

Kalel and Michael at Joe DiMaggio’s Children Hospital, during another round of regular weekly infusion treatments. These pictures show both how vulnerable this disease makes our SuperHeroes; and how resilient and courageous they are in their fight against it. Wagon...

Mothers Day Message

Mothers Day Message

Three mothers doing whatever it takes to save their boys. Take a moment to watch and share. There is no greater insight into the future than recognizing…when we save our children, we save ourselves. –
Margaret Mead

Infusion Days

Infusion Days

Infusion Day SuperHeroes. No matter what life throws their way, they will always overcome and find time to play.Hope is in Our Genes 💜 #JDCH #MPS #MPSAwareness #Courage

Events

Inaugural MPS SuperHero 5K

Inaugural MPS SuperHero 5K

Join us on Saturday, March 3, 2018 for our Inaugural MPS SuperHero 5K Run/1Walk to raise awareness and fund a cure for MPS II Date:                    Saturday, March 3, 2018 Start Time:         7:00am to 12:00pm Location:             Vista View Park  4001 Southwest...

A night of SuperHeroes

A night of SuperHeroes

On October 25, 2017 we teamed up with the Miami Heat as the nonprofit of the night "A night of SuperHeroes." Tickets sold from the Heat game raised proceeds towards our foundation. We are happy and grateful to the Miami Heat Organization and the Headquarter Toyota...

Crossfit Siege Marlins WOD Fundraiser

Crossfit Siege Marlins WOD Fundraiser

On August 27, 2017 Crossfit Siege along with other gyms across South Florida came together for a friendly competition to help the community. Each gym was given the opportunity to choose a non profit charity of their choice, sell tickets to the Marlins game and have a...

Kalel DaMan Joseph

Kalel DaMan Joseph

Diagnosed with MPS II

DOB: 1/6/13

Sebastian Alberto Kai Estevez

Sebastian Alberto Kai Estevez

Diagnosed with MPS II

DOB: 11/17/13

Michael Stuart Stetson II

Michael Stuart Stetson II

Diagnosed with MPS II

DOB: 10/5/11

As part of an effort with a conglomerate of parent-led nonprofit organizations, we have collected $1,100,395 of our $2,500,000 target. It is 44.02% of our goal to save the children affected by MPS II. Thank you to all supporters who are getting us closer to the cure. Remember, you don’t need super powers to be a SuperHero!

44.02%

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Fight MPS II

You don’t need Super Powers, to be a SuperHero!