BE A SUPERHERO. SAVE A LIFE.
1 out of about 150,000 boys are born with Mucopolysaccharidosis II (MPS II), also known as Hunter Syndrome. This rare metabolic disease is one of many types of MPS which affects the joints, the liver, the spleen, the airway, the heart, and in most cases, the brain which goes through cognitive regression. The life span for someone with this disorder is expected to live up to around 12-15 years old.
Sebastian Alberto Kai Estevez
Diagnosed with MPS II
Michael Stuart Stetson II
Diagnosed with MPS II
Kalel DaMan Joseph
Diagnosed with MPS II
Events
Matt Busch, will ride his motorcycle 10,000+ MILES across the country in honor of the MPS SuperHero Foundation
Long-time supporter, Matt Busch, will ride his motorcycle 10,000+ MILES across the country in honor of the MPS SuperHero Foundation. Thank you Matt! Make a pledge to Matt Busch as he rides in honor of the MPS SuperHero Foundation!
Our 3rd Annual Kickin’ for a Cure Kickball Tournament Champions, Miami Lakes Optimist Park
It is our honor to present our 3rd Annual Kickin’ for a Cure Kickball Tournament Champions, Miami Lakes Optimist Park Thank you to the @cityofhialeahgardens for hosting this year at the beautiful Westland Gardens Park! Thank you to all who volunteered, participated,...
Bay Harbor Islands 13th Annual 5K/10K
Friends, family, SuperHeroes!! Come show your support as Town of Bay Harbor Islands dedicates #mpsSuperHero Foundation as the beneficiary for their 13th Annual 5k/10k walk/run! Be the #SuperHero that these children so desperately need!...
Headquarter Toyota- Miami Lakes Jingle Bell Jog 2018
A huge thank you to friends, families, supporters, every #SuperHero, and every #Santa
Media
I Hope You Know – ft. G Sparticus
YouTube Premiere
Patients with Hunter Syndrome Gain Full Access to Critical Health Data Management Platform
Charlotte 11-year-old spreads awareness for cousin’s debilitating disease
A 5-year-old has traveled from Miami to the Queen City to seek help from people who can potentially save his life.
Those people? Specialists and his 11-year-old cousin.
“He’s really funny, he’ll make you laugh,” Mia said of her cousin Kalel.
Broward Families Working to Save 3 Boys Suffering From Same Rare Deadly Disease
Three Broward County families have been brought together by a grim reality. While they share a lot of commonalities having little boys under the age five, they also share the heartbreaking truth, that they’re watching these little boys die.
Council votes on MPS I being a mandatory Screening for newborns in the state of Florida
MPS SuperHero Foundation, along with Project Alive, Julius Louis Happy Little Guy Foundation, and EveryLife Foundation, attended the Newborn Screening Advisory Council Meeting in Jacksonville, FL to advocate for MPS. The Council voted today on MPS I being a mandatory Screening for newborns in the state of Florida.
City of Hialeah Gardens raises awareness for MPS II
Thank you Mayor Yioset De La Cruz, Council, and the City of Hialeah Gardens for allowing us to raise awareness towards MPS II. We want to express our heartfelt gratitude on the monetary pledge made. We highly appreciate your support on raising funds towards the cure for MPS II. Thank you all for your generosity we couldn’t be more grateful!
Thank you Mayor Stephanie Bruder, Council, & the Town of Bay Harbor Islands
Thank you Mayor Stephanie Bruder, Council, & the Town of Bay Harbor Islands for allowing us to bring awareness towards MPS II. We really appreciate your support on helping us spread awareness & raise funds towards the cure we so desperately need!
Thank you Mayor Francis Suarez and the City of Miami Government
Thank you to Mayor Francis Suarez, the council and the City of Miami Government for their support to help fund the cure for MPS II.
You don’t need Super Powers, to be a SuperHero!
Donate Today
