Our 3rd Annual Kickin’ for a Cure Kickball Tournament Champions, Miami Lakes Optimist Park

It is our honor to present our 3rd Annual Kickin’ for a Cure Kickball Tournament Champions, Miami Lakes Optimist Park Thank you to the @cityofhialeahgardens for hosting this year at the beautiful Westland Gardens Park! Thank you to all who volunteered, participated,...

Council votes on MPS I being a mandatory Screening for newborns in the state of Florida

MPS SuperHero Foundation, along with Project Alive, Julius Louis Happy Little Guy Foundation, and EveryLife Foundation, attended the Newborn Screening Advisory Council Meeting in Jacksonville, FL to advocate for MPS. The Council voted today on MPS I being a mandatory Screening for newborns in the state of Florida.

City of Hialeah Gardens raises awareness for MPS II

Thank you Mayor Yioset De La Cruz, Council, and the City of Hialeah Gardens for allowing us to raise awareness towards MPS II. We want to express our heartfelt gratitude on the monetary pledge made. We highly appreciate your support on raising funds towards the cure for MPS II. Thank you all for your generosity we couldn’t be more grateful!

BE A SUPERHERO. SAVE A LIFE.

1 out of about 150,000 boys are born with Mucopolysaccharidosis II (MPS II), also known as Hunter Syndrome. This rare metabolic disease is one of many types of MPS which affects the joints, the liver, the spleen, the airway, the heart, and in most cases, the brain which goes through cognitive regression. The life span for someone with this disorder is expected to live up to around 12-15 years old.

Sebastian Alberto Kai Estevez

Sebastian Alberto Kai Estevez

Diagnosed with MPS II

DOB: 11/17/13

Michael Stuart Stetson II

Michael Stuart Stetson II

Diagnosed with MPS II

DOB: 10/5/11

Kalel DaMan Joseph

Kalel DaMan Joseph

Diagnosed with MPS II

DOB: 1/6/13

2020 has been a challenging year for everyone, but that did not stop our Superhero Matt Busch from supporting MPS SuperHero foundation this year. In August, Matt Participated in “The Hoka Hey Motorcycle Challenge” the toughest ride for 10,000 miles to help raise money for children affected by MPS. We are excited to announce this fundraiser raised $5481.13.

We are forever grateful for our long time supporter Matt and everyone who donated to this fundraiser. Thanks to you all we are able to continue our mission to find better treatments, advocate and help families affected by MPS. #mpsSuperHero
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Events

Bay Harbor Islands 13th Annual 5K/10K

Bay Harbor Islands 13th Annual 5K/10K

Friends, family, SuperHeroes!! Come show your support as Town of Bay Harbor Islands dedicates #mpsSuperHero Foundation as the beneficiary for their 13th Annual 5k/10k walk/run! Be the #SuperHero that these children so desperately need!...

Media

City of Hialeah Gardens raises awareness for MPS II

City of Hialeah Gardens raises awareness for MPS II

Thank you Mayor Yioset De La Cruz, Council, and the City of Hialeah Gardens for allowing us to raise awareness towards MPS II. We want to express our heartfelt gratitude on the monetary pledge made. We highly appreciate your support on raising funds towards the cure for MPS II. Thank you all for your generosity we couldn’t be more grateful!

You don’t need Super Powers, to be a SuperHero!