Council votes on MPS I being a mandatory Screening for newborns in the state of Florida

MPS SuperHero Foundation, along with Project Alive, Julius Louis Happy Little Guy Foundation, and EveryLife Foundation, attended the Newborn Screening Advisory Council Meeting in Jacksonville, FL to advocate for MPS. The Council voted today on MPS I being a mandatory Screening for newborns in the state of Florida.

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City of Hialeah Gardens raises awareness for MPS II

Thank you Mayor Yioset De La Cruz, Council, and the City of Hialeah Gardens for allowing us to raise awareness towards MPS II. We want to express our heartfelt gratitude on the monetary pledge made. We highly appreciate your support on raising funds towards the cure for MPS II. Thank you all for your generosity we couldn’t be more grateful!

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Thank you to the Miami-Dade Fire Rescue, Engine45, Rescue69 and Squad69

“Great things are brought about and burdens are lightened through the efforts of many hands anxiously engaged in a good cause” by Elder M. Russell Ballard
Thank you to the Miami-Dade Fire Rescue, #engine45, #Rescue69 and #Squad69 for being a perfect example of a real SuperHero on and off duty. 💜

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Thank you Mayor Stephanie Bruder, Council, & the Town of Bay Harbor Islands

Thank you Mayor Stephanie Bruder, Council, & the Town of Bay Harbor Islands for allowing us to bring awareness towards MPS II. We really appreciate your support on helping us spread awareness & raise funds towards the cure we so desperately need!

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BE A SUPERHERO. SAVE A LIFE.

1 out of about 150,000 boys are born with Mucopolysaccharidosis II (MPS II), also known as Hunter Syndrome. This rare metabolic disease is one of many types of MPS which affects the joints, the liver, the spleen, the airway, the heart, and in most cases, the brain which goes through cognitive regression. The life span for someone with this disorder is expected to live up to around 12-15 years old.

Annual Kickin’ For A Cure Kickball Tournament

Saturday, October 20, 2018

Miami Lakes Optimist Park

Saturday, October 27, 2018

Nevin Community Park

SuperHeroes fighting MPS

Kalel DaMan Joseph

Kalel DaMan Joseph

Diagnosed with MPS II

DOB: 1/6/13

Sebastian Alberto Kai Estevez

Sebastian Alberto Kai Estevez

Diagnosed with MPS II

DOB: 11/17/13

Michael Stuart Stetson II

Michael Stuart Stetson II

Diagnosed with MPS II

DOB: 10/5/11

City of Hialeah Gardens raises awareness for MPS II

City of Hialeah Gardens raises awareness for MPS II

Thank you Mayor Yioset De La Cruz, Council, and the City of Hialeah Gardens for allowing us to raise awareness towards MPS II. We want to express our heartfelt gratitude on the monetary pledge made. We highly appreciate your support on raising funds towards the cure for MPS II. Thank you all for your generosity we couldn’t be more grateful!

Media Coverage

Events

You don’t need Super Powers, to be a SuperHero!

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Fight MPS II

As part of an effort with a conglomerate of parent-led nonprofit organizations, we have collected $2,018,735 of our $2,500,000 target. It is 80.75% of our goal to save the children affected by MPS II. Thank you to all supporters who are getting us closer to the cure. Remember, you don’t need super powers to be a SuperHero!

80.75%