MPS Super Hero FoundationBe a SuperHero. Save a Life.
I Hope You Know – ft. G Sparticus
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Patients with Hunter Syndrome Gain Full Access to Critical Health Data Management Platform
Charlotte 11-year-old spreads awareness for cousin’s debilitating disease
A 5-year-old has traveled from Miami to the Queen City to seek help from people who can potentially save his life.
Those people? Specialists and his 11-year-old cousin.
“He’s really funny, he’ll make you laugh,” Mia said of her cousin Kalel.read more
Broward Families Working to Save 3 Boys Suffering From Same Rare Deadly Disease
Three Broward County families have been brought together by a grim reality. While they share a lot of commonalities having little boys under the age five, they also share the heartbreaking truth, that they’re watching these little boys die.read more
‘Superheroes’ Fight Little Known Disease With Kickball
A group of caped [MPS] “Superheroes” descended on Brian Piccolo Park on Saturday with a steely-eyed determination and a common arch enemy — Hunters Syndrome.read more
South Florida families band together to battle rare disorder
3 mothers are trying to raise $2 million for clinical trial to find cure for Hunter syndrome By Kathleen Corso COOPER CITY, Fla. - In a courtyard, three young boys, ages 5, 4 and 3, kick and toss balls with playful abandon. They are not related, but they all share a...read more